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Proceeded with Endoscopy


I was hoping we wouldn't have to do another scope since Buddy was doing so well this past week, but his doctor thought we should, and I'm glad we did.  Dr. L said it showed gastritis (inflammation of the stomach) and inflammation of the lower 3rd of his esophagus.  His blood work is in, but the pathology results haven't been posted yet.  From what I can see on his online chart, his white blood cells, total neutrophils, and platelets are below the normal range.  Not sure what that means, if anything.  The good news is - he gained 2 pounds, the villi have grown back in his small intestine, and his celiac score is 5!!  Six months ago he had partial to subtotal villous loss (villi increase the surface area for the absorption of nutrients in small intestine)...and his celiac score was 56 (it should be under 19).  We should get the pathology results by Wednesday...hoping it's sooner, I'm not good at waiting!

Dr. put Buddy on Carafate 4x a day to help heal the inflammation.  So far it is causing some tummy cramping, headaches, and it is decreasing the effectiveness of his reflux medication.  He's suppose to be on this for a week.  He missed school yesterday because his stomach was hurting and he was "throwing up in his mouth".  Yuck.  He's been up for an hour this morning and so far no complaints...but he hasn't eaten yet so we'll see...

So we are seeing some improvement, but we need to get the reflux and inflammation under control.  He is still having issues with fructose.  I started pushing his limit and allowed 1 mini GF cupcake on his birthday, then 1/2 a clementine orange that evening and he was sick for 2 days.  Darn.  I was really hoping he could tolerate it.

Tootsie had her blood work done for the celiac genetic panel while Buddy was in recovery.  Anxious to get the results!

Numbing gel


Warming packs


I.V. is in!  He said it hurt, but he was brave.


This is when the nerves kick in!  Lots of tears and anxiety when he jumped on the bed this time.




He did it!  Such a silly boy when he wakes up.  He was making us laugh.
Update: Buddy ate a Swedish pancake and now he's curled up with stomach cramps. I have a call into the after hours nurse to see if she can page the doctor. Not sure if we should continue with this medication.

Update #2:  I spoke with the on-call doctor and he said to stop the Carafate.  He said it's not an uncommon reaction...either the kids tolerate it or they don't.  We didn't give him his second dose of the day and he was able to eat lunch without pain.  Yay!  We should hear from our regular doctor on Monday, but the on-call doctor said he didn't see anything alarming on pathology results.  Good news!


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