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I spoke with the nurse this morning and she said Dr. I wanted to monitor Buddy's blood cell counts. The bone marrow biopsy is not necessary at this point! Yay! He was happy with the increase in Platelets and Neutrophils. Great news! He would like another CBC done in 3 months, then he'd like to see Buddy in 6 months.
The tests also showed he is not deficient in b12, he's not anemic and his SED rate (inflammatory markers) and other chemistries were normal. He was also up 2-1/2 pounds since starting Operation Weight Gain on December 29th (4 weeks ago). Dr. I didn't think the mild depression or sleep issues were anything concerning. He thought the anxiety from having his world turned upside down is all that is causing it. We'll work on relaxation techniques in the evening to see if we can get him in bed and asleep at a decent hour, which will help with his overall mood. The sore tongue that Buddy complained about was nothing more than an accidental bite...and the tummy upset seems to be non-existant if we keep up on his reflux medication. He is also on Miralax daily to keep from becoming constipated.
Tootsie is also up 2 pounds since December 29th! We are trying to stretch out her Xifaxan (for SIBO) to every 2 months, but we had to start it at 6 weeks. She was having a lot of gas, a little tummy pain after eating, was becoming irritable, and was waking at 6:00AM, then 4:00AM instead of her usual 7:00AM. She's been on it for 3 days and is back to feeling good and is sleeping better. It would be fantastic if we could ever figure out why she gets recurring SIBO...Dr. L (GI) couldn't give us an explanation.
Good news! I am new to your blog, I've just read the last few posts, but will go way back. I live in Australia, and have two boys with gut issues. The eldest (5 years old) has fructmal and non-IgE allergies to dairy and soy, plus he has unexplained deficiencies in B12, vit D and iron. The youngest (2 years) has no diagnosis yet (apart from the long term one of the same dairy allergy), but does have one of the coeliac genes and fructmal is a recent suspect as well. He also doesn't gain weight well, never has. I'm looking forward to following your story, and hopefully picking up some tips along the way :)
ReplyDeleteHi Sarah! Thank you for commenting. It's always great to hear from my readers/followers. I'm glad you stumbled upon my blog...it sounds like we have a lot in common. I'm sorry to hear both of your boys have GI issues. You are welcome to join the Parents of FructMal Kids group on FB, even though you live in Australia. Please let me know if I can answer any questions!
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