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We have a new GI doctor ("Dr. A") that I am super excited about. He has given us hope that we can get to the root of Tootsie's recurring SIBO issue. She has been dealing with this for 6-1/2 years now. We have seen so many health care providers over the years it's ridiculous... Naturopaths, Pediatricians, Walk-in Clinic doctors, Gastroenterologists, an Endocrinologist, a Neurologist, Counselors, Acupuncturists, and Massage Therapists. I finally feel like we have found the doctor that is truly going to help us. He's the only integrated GI in the state, meaning he works directly with a naturopath to formulate a treatment plan.
We are currently in the info-gathering stage. Tootsie will have a lactulose breath test on Tuesday, February 21st to check for SIBO. She has had so many breath tests. Probably 8 of them...with only 3 successful ones. She usually vomits, which voids the test. This time Dr. A prescribed Zofran so hopefully she'll be able to keep the solution down. He is also having her take a tablespoon of mineral oil each day to address her mild constipation, vitamin C for easy bruising, and 1,000 IU of vitamin D. And she is doing a gluten challenge by eating a saltine cracker each day.
At the breath test appointment she will bring in a stool sample and the following labs will be drawn: Food Allergy Panel, CBC w/ diff w/ plt, Chem 18, C-Reactive Protein, Free T4 (Thyroxine), TSH, Celiac Panel, Serum B12 and Folate, OH Vitamin D.
Tootsie also had her well-child exam last week. She is following her height curve on the 14th percentile (53.8"), but her weight (63 lbs) has dropped to the 5th percentile. Once we get her gut healthy I'm sure we'll see some weight gain. That is our hope!
We have exciting news regarding Buddy! He is no longer showing signs/symptoms of having Fructose Malabsorption. He is trying all sorts of new foods that have been on the AVOID list for 4-1/2 years. It's like watching a baby eat a new food for the first time. He doesn't know it, but just watching him eat an apple or homemade sloppy joes almost brings me to tears. Celiac disease and having to avoid gluten is a drag, but it will be so much easier without having to worry about fructose or FODMAPs!
Buddy is growing like a weed. I swear you can almost watch him grow. He is 5' 5-1/2" and 105 lbs. He has passed me up and is now working on dad...just a few inches to go!
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