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My FructMal Boy

Oh, the sadness I am feeling today...

We just learned that my boy also has Fructose Malabsorption & Small Intestine Bacterial Overgrowth just like his little sis.  He had a hydrogen breath test yesterday to confirm it.  I knew something was up...he should have been improving on the gluten free diet.  The doctor, the nurse, and the dietician said we should see healing within 3-6 months.  It has been 3 months and he is still having bouts of reflux, despite being on a daily reflux medication.  He is still having tummy pains, difficulty falling asleep at night, bad dreams, and some depression.

I feel like I've been socked in the stomach.  Why is this happening to my kids?  I know things could be worse, but shoot, this really takes a lot of the fun & the carefree spirit out of life.  I am taking a moment to feel sorry for myself, but tomorrow I will put on my big girl pants and I will do what needs to be done to keep my little kiddos healthy & thriving!  And I will continue to pray to God - He is my strength!

I will be talking with the GI clinic tomorrow to see which medication we will be using to fight the overgrowth...

Here are some photos taken during Buddy's Fructose-Tolerance Hydrogen Breath Test:

He was not feeling well when we first arrived.  He has a tendency to get carsick...so a 2-hour car ride, and a tummy that had been on a 24 hour fast (12 hour restricted diet & 12 hour fast), wasn't a good combination.




Getting ready to down some fructose...

Visiting the 3rd floor (where you'll find our favorite GI doctor) and starting to feel better...

Killing time....(it's a 3 hour test)



We snuck out for a little bit to enjoy the sunshine and to check out the beautiful gardens.  The bushes are shaped like all kinds of critters...ducks, bears, alligators, elephants, and more...

Buddy wanted to make a wish at the wishing fountain.  He said he couldn't tell me what his wish was or it wouldn't come true.  I have a feeling I know what he wished for...



Comments

  1. amySeptember 19, 2012 at 7:43 PM

    hang in there. what is amazing is something or "someone" put us on a path to meet each other and lean on each other during this time! you are a good momma!

    ReplyDelete
  2. FructMal MamaSeptember 19, 2012 at 8:42 PM

    Thank you, Amy! I'm lucky to have your support & friendship. Who knew when we met 2 years ago that our journeys would be so similar...kinda spooky.

    ReplyDelete
  3. RanziMarch 6, 2014 at 5:41 AM

    Oh sweety I feel you. My girl just turned 4. She was diagnosed with colitis when she was 18 months old and ever since we were in a roller coaster. She was in pain almost every single day and every doctor said its the colitis but I felt differently I asked for the fructose malabsorption test and she was positive. And she was already allergic to eggs and oats and chicken plus other sensitivities and doesnt tolarate corn or gluten well. I had the same thoughts ahhh it was and still a lottle hard. But I pull my self up for her. I make everything from scratch I even wrap her chocolates and make everything mpre special for her. Please ask me of you wanted any recipe am here. Hope all is well at ur side.

    ReplyDelete

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