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Showing posts from February, 2017

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THIS EMAIL BRINGS TEARS TO MY EYES

I blog about my kids' medical issues with hope it reaches a family struggling for answers. When I hit "publish" I often wonder where it will travel on the interwebs...and if it actually does reach the audience it's meant for.  Well, I received confirmation this morning from a thankful mama. This email broke my heart and made it swell at the same time. It's a lengthy one, but a good one! ❤️ Thank you for sending this to me, "Jane"! I am so happy for your boy. Way to fight for him and not give up!!  Our momma instincts are there for a reason...we must listen to them!  * I did question whether or not this little boy could have HFI (Hereditary Fructose Intolerance), which is very different from Fructose Malabsorption.  It can be fatal, as it can lead to kidney and liver failure.  I asked his mom to look into it and have it ruled out.  You can learn more about HFI here: HFI Laboratory HFI University . Hello! I can’t remember, but I think

NEW Gastroenterologist - SIBO BREATH TEST

The GI clinic is 2 hours from home so we booked a hotel room for the night.  It was a great way to break up the really awful day of diet prep .  Tootsie is not a fan of chicken or potatoes so we had to get creative.  I cooked some chicken tenderloins in the Instant Pot with some water, salt & pepper, then ran them through the food processor and shaped the meat into nuggets.  Then put a couple slices of Udi's White Sandwich bread in the food processor & rolled the nuggets in the crumbs.  I refrigerated them overnight and microwaved them for 30 seconds when she was ready to eat them.  She said they tasted pretty good.  That's huge coming from a girl that generally won't touch chicken with a ten foot pole!  I picked up some plain baked potatoes at Wendy's and some jasmine rice at Asian1 on the way.   She took some Zofran at 11am and at 7pm.  That really helped keep the nausea away from being hungry. Once we got settled in we went for a dip in the pool.  It was

NEW Gastroenterologist - APPOINTMENT #1

Here we are 1 year later...Tootsie is 11 and Buddy is 13. We have a new GI doctor ("Dr. A") that I am super excited about.  He has given us hope that we can get to the root of Tootsie's recurring SIBO issue.  She has been dealing with this for 6-1/2 years now.  We have seen so many health care providers over the years it's ridiculous... Naturopaths, Pediatricians, Walk-in Clinic doctors, Gastroenterologists, an Endocrinologist, a Neurologist, Counselors, Acupuncturists, and Massage Therapists.  I finally feel like we have found the doctor that is truly going to help us.  He's the only integrated GI in the state, meaning he works directly with a naturopath to formulate a treatment plan. We are currently in the info-gathering stage.  Tootsie will have a lactulose breath test on Tuesday, February 21st to check for SIBO.  She has had so many breath tests.  Probably 8 of them...with only 3 successful ones.  She usually vomits, which voids the test.  This time D